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The best day of my life.

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    The best day of my life.

    Before I begin my story, I would like to say a few things. Let it be known that I am proud of who I am, what I have achieved, the lives I have saved and touched and the countless smiles I have brought to people's faces. I am opening up to everyone on this website because I think, whilst my story is in no way special, I do believe it should be heard. People have said I am strong, but in reality I am simply being me, and doing what I do best in my own manner... which is being me. I know, you're probably thinking, "Man, this girl's obscure," but that's just how it is with me. But enough of that. Let's begin. Head's up... this is a long story, but bare with me....

    My story begins at the age of 13. Well, one part of a larger picture, but I won't bore you with all those details. I was never exactly the sort of person you'd suspect that something would be "wrong" with them. I never got into trouble at school with schoolwork or other pupils, though I was bullied; I barely ever went to the doctors, and hospital appointments were an extremely rare occurrence, because my health was great! Or so I thought. After several months, I began to experience strange, sharp pains around my heart, and I remember how much it scared me. Looking back, I had a good reason to be fearful; what it was remained a mystery to me for many years... until today, the day I posted this story. But I'm getting ahead of myself.

    Now, I continued to have these pains every few months. After the first time, and the many times it happened afterwards, I started to anticipate it more. Eventually, having told my mum and dad what was happening, I went to the doctors. They checked me out, but said they couldn't see what could be causing it, and that it wasn't coming from my heart, after they did some testing. So they sent me on my way, and that was that. But the pain continued happening, and after many more months of unanswered questions and unhelpful doctors, we moved to a different doctors' surgery, and the doctor there soon after diagnosed me with a condition called Costochondritis, a painful inflammation of the costal cartilage around the sternum, a long-term chronic pain condition that usually went after 6-8 weeks after being discovered and treated appropriately. However, and this was the big however. I had to come to terms with the fact that, despite my age, I would be faced with a possible lifetime of pain, because there is no immediate cure. Only relief and alleviation. It took me at least 5 years, down the line, to finally accept I might have this permanently, because when I was 17, I attempted to join the navy to fight for my Queen and country in my own way. I wanted to be a nurse.

    It was this "calling," this want, that drew me towards the end of my time at highschool to apply. And once my application was accepted and it became much more serious, I started working out like I never had done before. In the space of a year, I lost over 2 stone (about 25 pounds) and was well on my way to losing another large amount of weight. But I didn't realise how much it was affecting my body. And one night, 8 weeks into a training programme, I was on a machine when my chest gave way, I leaned back and an almighty CRACK resounded across my torso, followed by a breathless storm of agony. I'd never felt such pain as I did that day. I apologised to my instructor and had to leave. I managed to get back to my mum and dad, who'd come to pick me up that evening, and once they saw me, they knew something was wrong. So I told them, and my deepest fears were realised.

    The pain got worse as the months passed. We tried everything we could to figure out what was going wrong. I don't remember exactly what happened, I suppose I don't really want to remember. I failed my Navy entry exam, and my application was terminated. Through my devastation, I decided to apply for university, to train as a nurse. I was probably foolish, but I wanted to be a nurse more than anything. I love people, despite what most do to each other and the ugly characteristics a lot possess, that at the same time sadden me. I wanted to care for others, help others. This was what I thought was my calling. I was so, so silly!

    I got through an interview for university, and in February 2011 I was told I had been offered a conditional place as a student nurse at my local, yet firstly chosen, university. I was over the moon. So long as I got my predicted grades or better, I had a guaranteed spot at university. I got my predicted grades in the summer of that same year, and in September 2011, I proudly walked among the other students at my university as a student nurse. It was another month before I got my nursing uniform, and I remember coming home with it, feeling so happy and proud of myself.

    Sadly, it couldn't last. Because I became completely aware, shortly after my fifth placement on a ward/with community nurses, that I could no longer maintain the demanding physical aspect of the nursing degree. A year and a half after my journey began, it came abruptly to an end; as I finished my final shift of my final placement ever, I became clumsy, lackadaisical, and my guise dropped. My suffering in silence came to a head. I couldn't focus; 12 hour shifts I'd done in completely silent pain caught up with me. I'd kept a smile on my face all the time, and never once did I complain. Why, you might ask.

    Because I loved what I was doing too much. And giving it up is the hardest thing I've ever had to do.

    I got home that night and cried. And I didn't stop for 3 days straight. I had a complete mental and physical breakdown, and I became a shadow of who I'd once been. Once the university was aware I would no longer be able to continue, the poignant messages of care and affection from my fellow classmates overwhelmed me. And so I sank into a deep depression, full of raw physical and emotional pain, that in the end almost killed me. I almost took my life May 2013, when I sank to my lowest point. I admit it was self-inflicted pain, but by being selfless and doing the right thing for others yet being unable to do the right thing for myself, I cast myself the dire hand. My parents, and a few close friends, were the ones who saved me, and for the next year and a half, I spent my time recovering and focusing on myself, getting the medical care and such that I needed. I got the meds I needed and that worked for me, I had to fight 6 months to get any kind of financial aid, and in the end I won the case. I was living with my parents thankfully; had I not been doing so, I would have ended up homeless. My doctor and a few other health experts did what they could for me too, and attempted to get to the bottom of my condition.

    Within the space of a year and a half, I started to slowly recover and recuperate. I wasn't able to do a lot of things, thus I became highly isolated and my depression and pain got the better of me a lot, though I fought hard back against it. I couldn't lift heavy objects without igniting painful "flare ups." I had to be careful where I sat; uncomfortable chairs were just as bad as lifting heavy objects for me. It was a nightmare, lol.

    And it was also during that time I met him. Kurdt, my SO, whilst playing a video game. I didn't realise at that point what he would become to me.

    I was determined, despite myself, to get back into university. I refused to live a life being labelled as a "scrounger" and "disabled," for living off the welfare state. So, I applied to my old university again. Only this time, I chose a more sensible subject. Computer science. I love technology far too much for my own good

    I was accepted within a month of applying! I was so, SO happy. For the first time in ages, I was ELATED. As the months rolled by, and university drew closer, I grew more anxious. But it was the best thing I could have done. I knew that integrating myself back into the life of a student was going to be far from easy, but I knew I had to try. It was harder than I could ever have imagined. The first week wasn't so bad, but then the real work began. And I started panicking, because after just a week, I knew that I couldn't continue as a computer scientist, I couldn't understand any of the lectures and the lecturers themselves had indecipherable accents, speaking far too quickly. So I switched courses, with the guidance of my soon-to-be tutor at the Geography department, over to my current degree, a Geography (BSc) undergraduate course. I had to fight HARD to keep my Geography degree; my funding body for tuition fees deliberately refused to give me any aid, on the grounds I'd left my nursing course, however a financial officer from the university managed to contest and appeal against this decision, which she eventually won, saying their decision was unjust since it clearly stated that, should a student leave a course on the grounds of sickness or bereavement, then they would not have to worry about being declined financial aid. With a number of contacts in various departments including the library helping me, as well as several other measures and means of help, I have found the student life transition to be in my favour, despite my condition. It was mentally exhausting and overwhelming to begin with, but I've gotten on with things, whilst continuing to fight that which attempted to stop me in the first place.

    #2
    Last April (2014), I went to see a specialist consultant from a pain management team who claimed, by the end of the appointment, that I had fibromyalgia (a painful condition which affects all aspects of the patient's life) yet refused to formally diagnose it, and that I should go on a pain management programme that would collide with my university lectures and have steroidal injections directly into my chest done under local anaesthetic, and the psychologist with her asked the most obscene questions and whether I was suicidal to that day. I have never felt so disgusted and annoyed in my life as I did to that moment.

    But then we come to present day.

    The 29th January 2015. The day I found myself again.

    I had an appointment with a consultant rheumatologist and, whilst on the way there, I had no idea that I would come away feeling so... different. I went with the expectation that I would be recognised that I had these awful conditions that, whilst not life-threatening, were in themselves quite serious. When I went to see him, my mum came in the room with me. And I opened up, speaking in a flat voice and guarding my emotions behind a wall of steel, as I recounted for the millionth time the past few years' events, with my mum occasionally chipping in and adding a few details for me. The consultant was silent for the most part, asking a question here and there, but the remainder of the time, he took notes and never uttered a word. Then he did a few examinations, tested my reflexes and flexibility, testing to see as well if I had fibromyalgia.

    After awhile, he said, "I'm done, so if you'd like to sort yourself out and join me back in the office afterwards, that would be good. Thank you," and he left the room. My mum and I gazed at each other, murmured a few words to one another. What was he thinking? What was going on?

    When we got back to the office, we took our seats again, and after he re-read his notes, he asked me, "What did you think you came here today expecting, Holly?"

    "I'm not sure anymore," was my automatic response.

    "Well, I can tell you this. You do not have fibromyalgia, as I've tested to see if you have at least 12 of the 18 sore spots we test for to diagnose the disease. You don't have even close to that many." These sore spots are areas of pain which, when pressed, cause further pain to radiate around the associated area. "And nor do I think you have costochondritis any longer. You might have had it once upon a time, but it's not been there for years. Right now, the reason why you have this pain is mostly because of poor posture, you lean forwards a lot and constrict your ribs so you have limited movement, and you also have hypermobility." This means I am extremely flexible and joints are very lax in my body. "I have no doubt in what I'm saying."

    And nor do I doubt him. I'm still not quite sure what to think or say even as I'm typing this, except huge relief that has brought about a seemingly endless flood of tears because I know now, all the years of worry and not knowing, all the years of being afraid of ending up in pain by doing something overly strenuous, all the doctors who told me a load of crap and didn't know what they were doing, all those panic attacks rushed into ER needing oxygen because I couldn't breath properly... I know now I'm NOT ILL. What afflicts me is something correctable and something that can be helped better.

    He is the only consultant/doctor who has ever seen it from more than just a medical point of view. He saw me as a person with real feelings, with a real life, with real pain, not a lump of meat that has had a medical condition. He is literally the best in his field. He said to me, "If you go about with the attitude of "I CAN'T," then you will forever remain in a rut, and forevermore will you suffer and not get anywhere." He is right.

    So now I work to make my life better. Not just for my sake, but for my SO. Because I'm a young woman in love with the man of my dreams, and I could not ask for anything more. My goals in life, my dreams, my hopes... they are no longer hidden from me, and no longer am I hidden from myself.

    So I say this to each and everyone of you. NEVER GIVE UP ON YOUR DREAMS. And never... ever... EVER give up on yourselves, or your SOs.

    Never stop fighting, and never stop loving, for love is the strongest force, and it can conquer all.

    -Holly.

    Comment


      #3
      Wow holly, I'm quite grateful to have you as my friend on LFAD. I read it all and teared up, makes me think of my story. Perhaps I'll write mine later tonight, if I can make it through the tears lol
      Thank You I say that with the utmost gratitude.
      "We are beings attracted to the essence of hope, and life is the all encompassing hope that everything can change; that everything can be better."

      Comment


        #4
        Originally posted by Honour View Post
        "If you go about with the attitude of "I CAN'T," then you will forever remain in a rut, and forevermore will you suffer and not get anywhere." He is right.
        YES!!!

        This is amazing sweetheart I'm so incredibly happy for you. Never give up I'll admit, this made me tear up, but in the best way possible
        "Sometimes you just have to let art flow over you."

        Comment


          #5
          Such a great story! So happy for you

          Comment


            #6
            such a wonderful story!! I loved reading it Yes stay positive always and fight for your dreams, never give up!!

            Comment


              #7
              This is amazing, you're amazing. I'm so glad there is a positive outlook. You're such a strong person, I hope you achieve everything you want. xx
              Flying out to meet him for the first time: 16th November 2014 - 14th December 2014
              Flying out to meet him for the second time: 3rd June 2015 -18th July 2015
              Flying out to meet him for the third time: 12th December 2016 - 12th January 2017
              His first flight to me: April 2018 DENIED ENTRY
              Flying out to meet him for the fourth time: 23rd June 2018 - 7th July 2018
              Got Engaged: 12th December 2016
              Married: June 29th 2018
              Hoping to close the distance: 2019/2020

              Comment


                #8
                I'm so happy for you! It's so uplifting to see your positive attitude and see your continued search prove that you can continue to pursue your dreams. I look forward to see how things continue for you and the exciting things that are ahead for you.
                To those who dream, nothing is ever far away.

                ​Distance is to love as wind is to fire. It blows out the little ones and fans the big ones.

                Comment


                  #9
                  I'm so, so happy for you, Holly! You are a true inspiration, and I don't doubt that you will achieve your goals and dreams

                  Comment


                    #10
                    Great attitude! wishing you continued progress and improved health.
                    Met Online : July 2013
                    Met in person : April - May 2014 (3 wks)
                    2nd visit : June - August 2014 (2 months)
                    3rd visit : December - Jan (2wks)
                    Proposal : December 2014
                    Closed distance : February 2015
                    Married : April 5, 2015


                    Comment


                      #11
                      This is amazing news. So, what did he recommend that you do in order to alleviate the pain and prevent it from happening? Just fix your posture? How silly that this is pretty much all that your problem was, and all those "doctors" told you it was this or that. I'm so happy for you!

                      Comment


                        #12
                        So proud of you! Made me cry! I will share too..if I can...
                        A lot of the time, I think back to when I wanted to end it, be free of this life. I was just 8, bullied since I was in year two. Coming home from school with taunts like "nasty slut" and "worthless bitch" in my mind and bruises on my arms from where I'd been pushed into walls. I was shy, and all of my friends had moved away. People would say they were my friend, and I trusted them, as I was a trusting person. And then the next day, or week, they'd turn around and join in. I was in second grade when it started, and it confused me. I'd never did anything to anyone, so why did these five guys seem to hate me so much? Eventually, I figured there must just be something wrong with me. Anyone who has been bullied before will understand, how even the little things hurt. Like standing up to speak, and the whole class laughs at you. Getting picked last for every team, and the team leaders arguing over which one of them had to take me, like I was some great burden. My parents tried to help, but we didn't have the money to move schools, or the time to homeschool me. And my mum was going through stress of her own. My dad has bipolar, depression, and anxiety. During this time, he was going through a psychotic episode. He was doing cannabis, saying he never loved my mum, me or my brother or sister, and that he would move into the empty shed next door and never see us again. In my life, I've only known my mum to cry twice. She cried a lot then, and not surprisingly, started smoking again. And for some reason, I blamed this on myself too. I felt hopeless. This may sound silly, but books mean the world to me. Because those characters within those pages where the only friends I had. When I was in those world, I was free, and free from fear. They taught me so many things. To be brave. To stand up for what you believe in. That no matter what the situation is, hope will spring eternal. No one on this Earth is worthless or alone. That everyone should be who they are, and rejoice in it, because there is absolutely nothing wrong with that. And that it is ok to be sad. It is ok to have moments of weakness and cry.

                        Of course, we contacted the school, but they just told the kids off, and made them sit away from me in class. Which did barely anything. And on that day, I stood and looked at myself in the mirror. Blond hair. Blue eyes. Pale skin. Thin build. Not really anything special. And I realised, that I had two choices. I could give into my depression, and end my life. Cut my life short at eight measly years of living, leave my family and loved ones heartbroken because it just seemed so easy, to let go and not feel. But then, I really thought about everything. Really, truly thought. In this life, do we not all go through trial's? Don't we all have experiences that make us feel down, and low and like it is better to just, not feel? I think we all do. And this world..this world we live in.It's not perfect, nothing in this life is. But it is there for us, doing the best it can. And that is what makes it so damn beautiful. I thought then, of the simple pleasures in this life. The feeling of warm sunshine on your face. A hug from a loved one. Kind words said to you by others for doing a good deed. There is so much in this world, so much beauty and wonder and love and joy. Of course, there is also hate, anger, jealously, and sadness and pain. But, which side will you listen to?I decided then that this is what my bullies would want. They told me on multiple occasions that no one loves me so I should go *****. BUT I WAS STRONGER AND I LIVED FOR MY FAMILY AND THE GOOD THINGS IN THIS WORLD. And I failed five college classes after I was almost raped and killed, it gave me PTSD, and set of panic attacks, which then set off OCD and Hypochondria. Therapy helps so much, as does my wonderful SO <3 I hope you didn't mind me sharing too. Chin up, keep living your life and enjoying it!
                        ~xClaryAsunax~

                        Comment


                          #13
                          What a wonderful story Holly! Thank you so much for sharing this and I'm so happy for you Keep on living life to the fullest!

                          Comment


                            #14
                            You are a wonderful and amazing person....Wow look how much you have accomplished!!! Here's to your future

                            Comment


                              #15
                              Originally posted by whatruckus View Post
                              This is amazing news. So, what did he recommend that you do in order to alleviate the pain and prevent it from happening? Just fix your posture? How silly that this is pretty much all that your problem was, and all those "doctors" told you it was this or that. I'm so happy for you!
                              Well, the best thing I can do for now is continue with my meds and such, but yes, working on posture and also a trip to an osteopath I haven't seen in a long time because it cost too much to see him in the end. I'm sure he'll be able to help me again, as well as being overtly grateful to know I'm alright.

                              Thank you guys. I think I may tear up again just at the responses lol.

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